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Author: ncvadm

6 Tips for Promoting Inclusion and Reducing Tokenization of Lived Experience Professionals by Rachael Landau

As organizations continue to grow and strengthen their inclusionary practices for lived experience professionals, there are some factors that should be considered by the organizations. Agencies and organizations that employ lived experience professionals should be thoughtful and intentional in their efforts to avoid tokenizing these individuals. Tokenization may occur when an agency appears to be inclusive, however, their organizational practices do not encourage authentic engagement, both in terms of decision-making and providing opportunities for engagement, rather than limiting their involvement. When organizational cultures support and elevate the voices of lived experience, they move closer to inclusionary practices, and they have the power to shape social justice reform at and beyond the agency level. Agencies should be prepared to ensure that these employees are valued, respected, and considered at all levels of decision-making. Here are some tips for promoting inclusion and reducing tokenization of lived experience professionals:

1. Assess for readiness and do some homework: it’s vital that employers understand the complexity and value of lived experience and the ways in which these perspectives can strengthen the mission of the agency.

2. Create opportunities for lived experience professionals to be involved in decision-making: this is especially important in terms of decisions that may potentially impact them directly or the youth and families they work with. Not only should they be included in these efforts, but their voices should be elevated and validated.

3. Collaborate effectively with lived experience professionals: employers need to recognize the valuable perspective that lived experience professionals bring to the organization and create opportunities for authentic allyship and partnership with these team members.

4. Individualize your approach: there is no “one-size-fits-all” when it comes to lived experience, so naturally, there should not be a cookie-cutter approach in supporting these professionals.
5. Avoid minimizing the experiences of others: a person’s experience is just that: THEIR EXPERIENCE. When professionals share their experiences, it is so important that their employers validate and honor what is shared.

6. Empower and identify opportunities for personal and professional growth: lived experience professionals should be provided with opportunities to advance their knowledge and skills, as well as share their knowledge and skills with others.

By promoting the inclusion of lived experience professionals and creating opportunities for their personal and professional growth, everybody wins. Organizations are privileged to employ staff who are willing and able to share their lived experience to impact the lives of others. The perspectives that these professionals bring have the potential to shed light on systemic issues and bridge gaps to promote social justice, diversity, equity, and inclusion. The knowledge and skills that they bring to the table are unique and cannot be learned in a classroom or read about in a book. Therefore, these professionals should continue to be elevated, supported, utilized intentionally, and most importantly, valued.

Teka Dempson

Teka Dempson

Program Manager, NC Youth & Family Voices AmplifiedProgram Manager, NC Youth & Family Voices Amplified

I am a lifelong learner and a resident of Durham, NC who graduated from Shaw University, Duke University (A one-time pilot), and Durham Technical Community College. My career has been new initiatives within medical facilities, group homes, county and state government, educational systems, early childhood, and higher education settings. Part of my journey was learning to embrace my Lived Experience with every system as a mother, caregiver, and Kinship Provider. I also gained an appreciation for how to share my voice for the needs, support, guidance, and resources required for my family to be successful. The journey was not easy. Making the choice to learn and understand systems, policies and procedures led to over forty-plus years of living, learning, building relationships/partners, and cultivating my skills and passion to support children, youth, and families locally, statewide, and nationally.

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Frederick Douglas

Frederick Douglas

Frederick Douglas

Family Training Coordinator

Hi I am Frederick Douglas and family is extremely important to me. I am the mother of 3 beautiful daughters, the grandmother of 5 and great grandmother of 6. I began this journey supporting my daughter who was experiencing emotional and behavioral mental health challenges. She was diagnosed with Bi-Polar disorder at the early age of 5. I was overwhelmed with questions. What is Bi-Polar Disorder? What did I do to cause my daughter to act this way? Who can help us? After what seemed to be forever of trying to figure out what to do, I was finally connected to a grant that had a non-traditional approach to supporting families. This was my first introduction to System of Care. My daughter was not seen as a client that needed to be fixed and my family was not seen as a problem that needed to be solved. We were invited to be a part of a process that valued our thoughts about what worked best for “our family”. My family learned more about the mental health delivery system through this process, and we were able to share our views about some of the barriers to the system that was not really meeting the specific needs of families. We sat on both local. State and national committees, participated as co presenters in trainings and even assisted in developing and participating as faculty in a system of care multidisciplinary course at UNCG. I have over 30 years of experience in training and supporting families within the principles of youth-led and family-driven care. I truly believe that the voices of the families being served must lead the decision-making process in service delivery and that it is a vital component of mental wellness. I currently serve as the Certified Family Training Coordinator with the University of North Carolina at Greensboro. Some of my National and community accomplishments are Nationally Certified Family Peer Specialist, recipient of the National Federation of Families ‘Jane Adams Award for Peer Support in 2017, an ordained Elder and Pastor of a nonprofit “Faith in Community Ministries” in Greensboro NC, Bachelor of Arts in Communications at the University of North Carolina at Greensboro. But my greatest contribution and accomplishment is using the experiences and lessons that I have learned in supporting my own family to support other families who also face the challenges associated with mental illness.

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Kara Lynch

Kara Lynch

Kara Lynch

Communication and Outreach Coordinator

I’m honored to serve as Communication and Outreach Coordinator for the Family and Youth Support and Education Program. I hold a Bachelor of Arts in English from North Carolina State University. Prior to coming to UNCG, I was a Youth Support Partner for High Fidelity Wraparound where I used my lived experience to advocate for and empower youth with mental health diagnoses. I am passionate about building relationships and sharing my experience in a way that leaves others feeling seen and heard and their stories validated.

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Kyle Reece

Kyle Reece

Kyle Reece

Youth Training Coordinator

After being diagnosed with Autism at 13, and spending his adolescent years transitioning through various residential placements, Kyle Reece got involved with various youth-serving mental health organizations in his hometown of Durham, North Carolina. After serving as president of multiple youth advocacy organizations, including Youth M.O.V.E North Carolina, Kyle transitioned into his role as Youth Training Coordinator at UNCG. With his position, Kyle utilizes his lived experience expertise, as well as his passion to affect change for youth in his community and across the state, by providing technical assistance and training to, youth-serving organizations, community collaboratives, and residential placements across the state.

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