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The Intersection of Identity and Lived Experience

My family recently visited a photography exhibit at the Buncombe County Register of Deeds offices, celebrating the 10-year anniversary of the legalization of same-sex marriage in NC. My wife and I were the 19th couple to be legally wed in NC on that day, on the front steps of the building where my wife now works. We brought our 6-year-old twins to witness our “law marriage,” as we decided to call it, drawing a distinction between it and our “love marriage” which had taken place a dozen years earlier.

Family is what you make it, it is about what you love into being. I remember as a child my favorite aunt described the agonizing choice, she felt she had to make in the 1960’s between being true to herself as a woman who loved other women and being able to have a family and children. She chose to live in truth and relied on the strong bonds with her brother and sister to create a sense of family. My aunt has always doted on my cousins, my sister and myself as though we were her own children. She sought her own path in the world, living authentically and creating family in her own way.

I thought of my aunt when, as a young woman, I fell in love with the woman who is now my wife, and we discussed adding children to our family. With deep love, hope and intention, we developed a plan to build and protect our family despite the fact that NC had not legalized same-sex marriage yet, so we would not have the protection and rights that come with legal marriage. On a beautiful day in May, in front of our friends and family, we held our first wedding, our “love wedding.” Though the wedding was not legal at that time, we legally changed our last names so our family could all share a name. For years, my wife and I carried pouches of documents any time we left the house, with 14 legal agreements that helped establish some of the most important rights of marriage. The hospital visitation agreement addressed one of my biggest fears, because no matter how much I and my extended family considered my wife my next of kin, hospital staff who didn’t know our family could have decided to keep me from seeing her at a time of great crisis if we hadn’t taken several legal steps to protect ourselves against that possibility.

When we decided that we wanted to have children, we intentionally crossed our biological and legal relationships with the children to ensure that we, as their mothers, would have the strongest possible ties to them. We were fortunate enough to be able to use in-vitro fertilization (IVF). However, the law had not caught up to science; my wife had to sign away her legal rights and donate her eggs for me to carry our children. This meant that after their birth, she had to adopt them back to regain legal ties to her own biological children.

The day after giving birth to our twins at 35 weeks’ gestation, I remember walking down the hall towards the NICU and my wife and I could hear and distinguish the cries of our children from the cries of all those other babies in the NICU. We have been listening out for their voices as best as we can ever since. Building a family with love, hope and intention while experiencing a broader world that doesn’t recognize our family, or views it with hatred, discrimination or disrespect is bound to impact those of us who experience it.

Generally, I try to deal with anxiety and uncertainty in life by learning as much as I can about what I’m facing. My career as a social worker, along with lots of meaningful conversations with other people living through similar experiences helped me to feel more prepared to build a happy, healthy gay family. However, I was not prepared for the overlap of post-partum depression and the

part of motherhood where I felt a sense of stark vulnerability coupled with an overwhelming sense of responsibility to protect my children from the world. I knew I could love resilience into them, but that I cannot protect them from the ignorance and hate that families like ours sometimes experience in the world.

We have always carefully chosen communities, schools and care providers for our children. Still, the kids would sometimes report that another child in class used the word “gay” as a slur, or that they were made fun of for having 2 moms. Compared to the hateful speech I regularly heard in school when I was their age, it always seemed rather mild to me, and yet I can’t help but wonder if it still seeps into my children’s hearts, making them feel like they don’t belong.

Like for so many families, the years around the pandemic were full of grief, loss, and anxiety. For our family experienced this experience started in 2018 when we took on primary care for a terminally ill aunt. In the following year, my father and mother-in-law were both diagnosed with terminal cancer. In 2021, we had a three-month period during which we lost our family dog, my dad and my wife’s mother in rapid succession. My children were struggling to manage, and I was struggling to support them. Our whole family was spinning, and we needed to find ease, grace and kindness.

During this time of loss, my daughter developed major mental and physical health symptoms. After years of supporting families in crisis, I was in the other chair now, getting handed phone numbers and names scribbled on post-it notes from all the places we went to find help, and feeling frustrated at the lack of expertise and available resources to meet our family’s complex needs. I couldn’t stop thinking about how hard this was even though our family had the privilege of a lot of access to information, connections and resources. I wondered how other people got through this. I started to ask myself the question “Am I the person with the most knowledge of my child’s condition in my area?” My wife and I reached out to every professional and personal contact we knew to get our daughter in with a specialist whose office is less than 3 hours away from home. Then, we had a crisis when my daughter had a bad reaction to a medication. All the anxiety about being treated as a “real” family came back. This meant that amid worrying about a potentially very serious issue with our child’s health, we had to explain over and over that she has two mothers and no father. We wondered if she was going to be allowed to have the support and comfort of both of her parents, like other children, at the hospital when she was there and in distress.

I love and am proud of the family I have created. I do not think that my being a lesbian caused my own or my daughter’s mental health challenges, but the uncertainty of walking in a world with an identity that is not always accepted by others does contribute to the anxiety I carry and the ease with which I am able to get support. I think back on my aunt’s experiences and how excited she is to celebrate my children like they were her grandchildren. Then I ponder what the world might be like if I am lucky enough to have grandkids one day. I hope that if one of them is queer, they are free to be true to themselves, have a family in the way they define it and can get support without fearing being seen as illegitimate. Sometimes taking the long view helps me have hope, to recognize that even though we still need to continue to grow our capacity for empathy and acceptance, that change is happening right in front of us every day.

6 Tips for Promoting Inclusion and Reducing Tokenization of Lived Experience Professionals by Rachael Landau

As organizations continue to grow and strengthen their inclusionary practices for lived experience professionals, there are some factors that should be considered by the organizations. Agencies and organizations that employ lived experience professionals should be thoughtful and intentional in their efforts to avoid tokenizing these individuals. Tokenization may occur when an agency appears to be inclusive, however, their organizational practices do not encourage authentic engagement, both in terms of decision-making and providing opportunities for engagement, rather than limiting their involvement. When organizational cultures support and elevate the voices of lived experience, they move closer to inclusionary practices, and they have the power to shape social justice reform at and beyond the agency level. Agencies should be prepared to ensure that these employees are valued, respected, and considered at all levels of decision-making. Here are some tips for promoting inclusion and reducing tokenization of lived experience professionals:

1. Assess for readiness and do some homework: it’s vital that employers understand the complexity and value of lived experience and the ways in which these perspectives can strengthen the mission of the agency.

2. Create opportunities for lived experience professionals to be involved in decision-making: this is especially important in terms of decisions that may potentially impact them directly or the youth and families they work with. Not only should they be included in these efforts, but their voices should be elevated and validated.

3. Collaborate effectively with lived experience professionals: employers need to recognize the valuable perspective that lived experience professionals bring to the organization and create opportunities for authentic allyship and partnership with these team members.

4. Individualize your approach: there is no “one-size-fits-all” when it comes to lived experience, so naturally, there should not be a cookie-cutter approach in supporting these professionals.
5. Avoid minimizing the experiences of others: a person’s experience is just that: THEIR EXPERIENCE. When professionals share their experiences, it is so important that their employers validate and honor what is shared.

6. Empower and identify opportunities for personal and professional growth: lived experience professionals should be provided with opportunities to advance their knowledge and skills, as well as share their knowledge and skills with others.

By promoting the inclusion of lived experience professionals and creating opportunities for their personal and professional growth, everybody wins. Organizations are privileged to employ staff who are willing and able to share their lived experience to impact the lives of others. The perspectives that these professionals bring have the potential to shed light on systemic issues and bridge gaps to promote social justice, diversity, equity, and inclusion. The knowledge and skills that they bring to the table are unique and cannot be learned in a classroom or read about in a book. Therefore, these professionals should continue to be elevated, supported, utilized intentionally, and most importantly, valued.

3 Ways to Beat the Winter Blues

The temperature has dropped, the daylight hours have decreased, and for some this means the Winter Blues has set in. This can be overwhelming especially for those battling the physical and mental downside the change in season while supporting those with mental health challenges. Here are three ways to combat the Winter Blues as a lived experience professional:

1. Be Productive. Keeping busy and being productive can aid in fighting the Winter Blues. The sense of accomplishment that comes from productivity releases dopamine, a hormone that plays a role in learning and motivation. Other ways to get dopamine include exercising, reading a book, or spending time in nature. Productivity doesn’t always mean doing something that will add another check to your to-do list such as completing documentation or a training. Sometimes it means doing something that your future self and those that you support will thank you for later, such as spending time with a pet.

2. Sunlight. Sunlight is vital for those fighting the Winter Blues because when there is less sunlight, the body produces less serotonin. A deficit in serotonin can lead to a decrease in mood, sleep, appetite, and memory. Get outside during daylight hours as much as possible. You can do this by taking walks through your neighborhood during your breaks if you work from home, having lunch outside or even meeting with your youth and families outside. A nice change in scenery can do wonders not only for you, but those you support. After all, you are probably not the only one struggling, so bundle up and get outside!

3. Stay connected. During the cold months, it’s easy to want to stay in and sleep and eat more than usual. Do not fall victim to those desires by staying connected to friends, family, and co-workers. One way to stay connected is to keep up with any holiday traditions with friends and family. If you don’t have any, take the time and put forth the effort to create some. If you’ve lost family members in recent years, be intentional about creating new memories with those who are still with you. Staying connected prevents isolation and helps fight the Winter Blues.

Highlights from the Family Partner Workforce

This month we’ve focused on defining what we do through a social media explainer video campaign that coincided with Global Peer Support Celebration Day on October 19th. A couple of other examples  of how we make an impact through lived experience come directly from the Family Partner Workforce.

Lydia Aponte-Tucker shared, “I am blessed to have a profession that allows me to help and give in such of meaningful way. I’m dedicated to support, educate and provide resources to parents and caregivers whose child or children are experiencing mental health conditions. I help navigate and facilitate resources available to ensure the best quality of life for my families. My passion for my profession originated after experiencing being a parent of a child with a mental health condition with no support nor knowledge at the beginning of our journey. Realizing that a lot of the challenges and obstacles I went through came from the lack of support, the lack of knowledge and the lack of resource awareness was the force behind me becoming a Family Partner. I am committed to be part of the movement that will take mental health to the next level because we have come far with mental health, but we still have a long way to go.”

“If I never do anything else, this class has helped and validated my experience so much I was just able to speak with a provider calmly assertively and eloquently while highlighting the common ground. We are the change and I believe that with every fiber of my being!,” proclaimed Jessica Page, a Family Partner 101 participant.

If you or someone you know is the caregiver of a youth or young adult who has mental or behavioral health challenges and is interested in learning more about utilizing their experience, please contact our Family Training Coordinator, Frederick Douglas at fmdougla@uncg.edu!

 

 

My Recovery Story & How Others Can Find Help with ATLAS by Ashley Riley

Finding addiction treatment shouldn’t be hard. When you decide to change your life, you should feel confident that your treatment facility will support you in your journey, using services backed by research and science. But unfortunately, that isn’t the case for everyone.

I began my recovery journey eight years ago.

At the time, I was facing suspension for my drinking history. Still, the University of Connecticut gave me another chance, as long as I attended a Collegiate Recovery meeting once per week, went to therapy and a harm reduction group, and attended 12-step meetings daily.

Life didn’t magically get better because I stopped using substances. It became increasingly more difficult – at the beginning of my sobriety, I was diagnosed with bipolar disorder. Years after I got sober, I was hospitalized twice and in mental health treatment for one year.

Looking back, I can see that due to untreated mental health issues, I wanted to drink every day in my first year of sobriety. Even after that year, I struggled because I was only being treated for part of the problem – my addiction. Suicidal thoughts plagued me daily until I found the proper medication; not having treatment for my addiction AND mental health could have cost me my life.

If Shatterproof’s Treatment Atlas had been available to me, I’m confident that my journey through treatment would have looked very different.

The website can be used by anyone touched by addiction to search for and compare treatment based on their individual needs. For me, I needed to find treatment for co-occurring disorders. I also needed mental health medication, treatment inclusive of the LGBTQ+ population, and treatment that accepted my insurance – all of which can be found on the Treatment Atlas website, treatmentatlas.org.

This is huge. Not only is Treatment Atlas a resource for those searching for care, but it is also a tool to hold providers accountable – to ensure that the services they offer are helpful, progressive, and backed by science. Treatment Atlas also gives patients like me a voice by providing a space to share their experiences through anonymous feedback surveys.

Treatment Atlas brings a sense of community to the overwhelming journey that is recovery.

I am grateful that I am now a member of the Shatterproof team and get to be a part of helping to guide communities to recovery. For North Carolinians, Treatment Atlas brings a sense of hope – hope that you can find the right treatment program to meet your needs and that you never have to walk this path alone. Although Treatment Atlas wasn’t around to help me during my initial recovery journey, I sincerely hope it can now help you and your loved ones in your time of need. We all deserve confidence in our recovery journeys.

 

Introducing The Guide’s Guide: A blog for lived experience professionals

The Guide’s Guide–A blog for lived experience professionals

Hello and welcome to The Guide’s Guide– a blog for lived experience professionals! Here you’ll find posts specifically for individuals who use their lived experience professionally or individuals who would like to learn more about peer support, mental health, behavioral health and how to impact their communities using their lived experience. These posts will come from the NCVA Team or as some say, lived experience experts.

Many people feel that using your lived experience means you’ve mastered some part of your life and for some lived experience professionals that is the case, but the truth is no matter where you find yourself on your journey, you’re still living your lived experience and so are we! Living. Learning. Exploring. For us, using your lived experience simply means supporting someone else on their journey as they face challenges similar to ones you’ve endured. We don’t get to choose how others process their experiences, but we can guide them through it! That’s what the Guide’s Guide is all about–guiding those who guide others and giving them the tools to succeed.

We declare this section of our website a brave space where we acknowledge the challenges that come with using lived experience professionally! We aim to support and empower those who are open to engaging in sometimes difficult yet important issues that surround mental health peer support for the purposes of becoming better lived experience professionals! Whether you are a youth partner, family peer specialist or in training, we hope these posts will add value to your experience and the impact you have on those you serve!

Join the movement by following us on social media and subscribing to our YouTube channel! There’s so much in store!

 

4 Tips for College Students Managing Mental Health

College can be frustrating when you live with a mental health condition, but I am living proof that earning a degree while living with a mental health diagnosis is obtainable. Your college career may not look like your peers’ and it may take you more than four years, but it is an amazing journey and you will have built so much character and resilience when you finally get that beloved piece of paper. Here are four tips for college students managing a mental health condition:

1. Plan, Plan, Plan.

Benjamin Franklin said, “If you fail to plan, you are planning to fail.” When it comes to managing a mental health diagnosis and attending college, I couldn’t agree more. I didn’t learn to plan out every little detail of my schedule until I was a working adult enrolled in online classes, and managing bipolar. I feel as though if I had learned this as soon as I was diagnosed, it wouldn’t have taken me so long to finish. I have found that it is important to manage every assignment and appointment. From that dreaded English paper to your 4 o’clock session with your favorite therapist. I’ve learned to use different organizational tools to plan such as planners, note cards, sticky notes and of course, my beloved iPhone. Find your magic tools and get to planning! Stay at least one week ahead.

2. Take Advantage of the Resources at Your Institution.

I was away at school for a few years before I began to take advantage of the resources available on campus such as therapy and other mental health services. I struggled for a while before asking for help. Partly due to my pride and partly due to just plain ignorance, I had no idea that there were so many opportunities to get help. They vary by institution, but nowadays most campuses have some type of mental health services and or resources for students. If you’re like I was and find it challenging to ask for help, think of how much more time and energy you’ll have when your issues are being addressed and not looming over you. Think of how it will feel focus on your courses, personal projects and passions instead of focusing on how you feel stuck and unable to move forward.

3. Communicate with Your Instructors.

Contrary to popular opinion, your college professors are there for you. I know in high school and in other parts of society it is taught that your professors don’t care if you succeed. News flash: they do! That’s why it is important to build rapport with them and let them know what’s going on with you. They can’t help you if they don’t know what you’re dealing with. At some colleges, this is as easy as having your diagnosis documented or simply sending an e-mail at the beginning of the semester letting your professors know ahead of time while at other schools you have to be registered with some type of disability services office or other resource. It can be overwhelming, but simply communicating with your teachers goes a long way when you’re mid-semester and your symptoms arise.

4. Stay the Course, but Remain Realistic.

There were so many times that I wanted to quit and to be honest, there were times when I did give up, but something always pulled me back. I believe this something was my desire to complete what I had started and ultimately accomplish what I knew in my heart of hearts I could do. At times, I felt like taking on a full course load in order to speed up the process, but I had to be realistic and know that too much on my plate would not be beneficial mentally or academically. In staying the course, I learned to slow down and revel in small victories, such as successfully completing one or two courses per semester. Over time this built my confidence in my ability to finish. This pace was perfect for me and my lifestyle. I was on a realistic path to completing my degree and it worked!


You will get overwhelmed and want to quit. Some days you’ll have more doubt than desire to move forward. You will also have days when you feel on top of the world and unstoppable because you are working hard and killing every obstacle in your way. It’s all a part of the process. Every failure serves as a lesson and every success becomes a metaphor for the next.


Adapted from the blog post Degrees and Diagnoses: Four Ways to Get One While Living with the Other at kontentlykara.com

We’re looking for a research/evaluation partner to help us learn about mental health & higher education institutions in North Carolina

Call for Proposals: Seeking a Research/Evaluation Partner to Focus on Mental Health and Higher Education Institutions in North Carolina

NC Youth & Family Voices Amplified Program

UNC Greensboro Center for Youth, Family, and Community Partnerships

 

The mission of NC Youth & Family Voices Amplified is to amplify the voice of NC’s youth and families in systems and services that support their mental health and well-being. We do this through education, community partnerships, and support to enhance family-driven and youth-led care. To learn more about NC Voices Amplified, please visit https://ncvoicesamplified.uncg.edu/

NC Voices Amplified is housed within the UNCG Center for Youth, Family, and Community Partnerships (CYFCP), and it is supported by a contract with the NC Department of Health and Human Services Division of Child and Family Well-Being

This year, as part of our strategic capacity-building activities related to Youth Peer Support in North Carolina, we will conduct a statewide needs assessment and develop an outreach plan specific to engaging higher education institutions (including 4-year colleges and universities and community colleges) across North Carolina. A focus will be on building connections between the Youth Peer Support movement in North Carolina and mental/behavioral health-related activities on college campuses. 

Requested research/evaluation services: We are seeking a collaborative research/evaluation partner to work with NC Voices Amplified and CYFCP staff to plan and implement two key deliverables:

  1. A needs assessment that should include both quantitative and qualitative data
  2. An outreach plan with recommendations for how NC Voices Amplified can effectively engage higher education institutions to promote youth and young adult mental health based upon the findings of the needs assessment

Project budget: The budget for this project is $15,000. The researcher/evaluator will be contracted with UNCG following UNCG’s contracting processes and policies prior to the project’s start date.

Project timeline: This project must be completed by June 30, 2023. 

Application process: We invite interested prospective facilitators to develop a brief (i.e., 1-2 page) proposal, plus a budget which can be included on a third page) to answer the following question: 

What do you propose to do within the budgeted amount of $15,000 to (1) conduct a high-quality needs assessment and (2) develop a needs assessment-informed outreach plan, with both deliverables relating to how NC Voices Amplified can best engage higher education institutions across North Carolina in its work related to Youth Peer Support?

Please indicate in your proposal how your research/evaluation approach will honor and elevate the lived experiences of youth and young adults.

To apply, please submit your proposal to Christine Murray at cemurray@uncg.edu by November 15th, 2022. 

Please note: Submission of an application in response to this Call for Proposals is a first-stage inquiry in the contracting process. No received response to this inquiry will be viewed by UNCG as any type of official contract between UNCG and the prospective facilitator. 

 

We’re Seeking a Facilitator for a Mental Health-Focused Youth Voices Storytelling Project!

Call for Proposals: Seeking a Facilitator for a Mental Health-Focused Youth Voices Storytelling Project 

NC Youth & Family Voices Amplified Program

UNC Greensboro Center for Youth, Family, and Community Partnerships

The mission of NC Youth & Family Voices Amplified is to amplify the voice of NC’s youth and families in systems and services that support their mental health and well-being. We do this through education, community partnerships, and support to enhance family-driven and youth-led care. To learn more about NC Voices Amplified, please visit https://ncvoicesamplified.uncg.edu/

NC Voices Amplified is housed within the UNCG Center for Youth, Family, and Community Partnerships, and it is supported by a contract with the NC Department of Health and Human Services Division of Child and Family Well-Being

This year, as part of our strategic capacity-building activities related to Youth Peer Support in North Carolina, we will conduct a statewide Youth Voices Storytelling Project that will involve a creative (likely arts-based) approach to providing forums for Youth to share their experiences related to mental and behavioral health. 

The impact of this project will be measured by documenting the number of individuals in the community who are impacted (e.g., by tracking social media and/or website analytics and/or by tracking attendance at any in-person events or forums) and by seeking evaluative feedback from the Youth who participate and share their experiences through the project.  

Requested facilitation services: We are seeking a dynamic facilitator (which could be an individual, team, or organization) to work with NC Voices Amplified staff to provide leadership, vision, and direct program development and implementation for the statewide Youth Voices Storytelling Project. At the present time, the specific plans for this project are still to be determined, and we anticipate that the facilitator will tailor the project to their unique talents and artistic/creative medium(s) and platforms. 

Project budget: The budget for this project is $20,000. The facilitator will be contracted with UNCG following UNCG’s contracting processes and policies prior to the project’s start date.

Project timeline: This project must be completed by June 30, 2023. 

Application process: We invite interested prospective facilitators to bring creativity to developing a brief (i.e., 1-2 page) proposal, plus a budget which can be included on a third page) to answer the following question: 

What do you propose to do within the budgeted amount of $20,000 to develop and implement a creative statewide Youth Voices Storytelling Project that will help elevate the voices and stories of youth and young adults around their experiences with mental health?

In your proposal, please describe how your facilitation approach will address both the quality and quantity of this project:

  • By quality, we mean that the project will provide a meaningful experience for the youth who will be involved, and also that the project will lead to the development of high-quality, impactful stories, in whatever medium(s) are used, that can be shared with the public in North Carolina to raise awareness about youth mental health. 
  • By quantity, we mean that the project will be able to include a significant number of youth participants, and also that it will have the potential to reach a large public audience to help achieve the project’s goal of raising awareness about youth mental health. 

Also, please indicate in your proposal how your facilitation approach will honor and elevate the lived experiences of youth and young adults.

To apply, please submit your proposal to Christine Murray at cemurray@uncg.edu by Friday, August 26th, 2022. 

Please note: Submission of an application in response to this Call for Proposals is a first-stage inquiry in the contracting process. No response received to this inquiry will be viewed by UNCG as any type of official contract between UNCG and the prospective facilitator. 

 

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